NHS charity funding to improve take-up of cancer… | Royal Free Charity

NHS charity funding to improve take-up of cancer screening by people with learning disabilities

25 July 2024 
A project funded by the Royal Free Charity is set to make it easier for people with learning disabilities in Camden and Islington to access cancer screening. 

The £350,000 grant will help tackle the barriers that often prevent or deter people with learning disabilities from getting important health checks that can detect cancer at an early stage.

Jon Spiers, chief executive of the Royal Free Charity, said: Cancer screening saves lives but access to the NHS’s vital screening services isn’t always equitable, especially for people with learning disabilities.

We’re delighted to be funding this life-saving project because we want local people with learning disabilities to feel safe and confident when they’re invited to cancer screening. We hope this means more cancers are identified as early as possible, giving patients the best chance of their treatment being successful.”

The project will be delivered over three years by Camden and Islington NHS Foundation Trust, now part of the North London Mental Health Partnership (NLMHP), London Borough of Camden and London Borough of Islington.

Alice Langley, managing director (Camden division), NLMHP, said: We are very proud to be involved in this hugely important initiative which will be genuinely life-saving for some of our service users.

Every individual should have equal access to good cancer diagnostics and treatment and this programme of work is a significant step forward in making sure this happens for some of our most vulnerable residents.”

The project will use proven ways to make it easier for people with learning disabilities to navigate the healthcare system.

This includes:

  • providing extra support before and during appointments and training family members and caregivers to help their loved ones with learning disabilities.
     
  • establishing community involvement and peer support networks to connect people with learning disabilities who have firsthand experience of cancer screening to others who haven’t had screening procedures. Together, they will create helpful resources such as videos and training materials to raise awareness and dispel myths.
     
  • working with young women aged 18–25 with learning disabilities to explain the importance of HPV vaccination. This helps protect against human papillomavirus (HPV) which is linked to an increased risk of certain types of cancer including cervical cancer.
     
  • exploring other support methods for those who may not be able to consent to screening.

The success of the project will be measured through feedback from those involved, tracking how many people with learning disabilities are getting screened for cancer and assessing the effectiveness of the training provided to healthcare professionals and support staff.

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