This study explores why some cells within a patient are more aggressive, why their change their structure, and how they respond to treatment. The aim is to increase understanding of which treatments work better on which patients.
There are different types of neuroendocrine tumours, NETs and NENs. This research is focussed on the most aggressive form which sadly affected Miranda Filmer, one of our amazing, courageous and inspirational patients.
Miranda, a gifted equestrienne and sportswoman, was diagnosed in 2017 and died on 10 June 2022, aged 30. The zebra motif below both captures Miranda’s passion for horse-riding and alludes to the universal international symbol for rare diseases.
Clinicians are often told, “when you hear the sound of hooves, think horses, not zebras.” They are urged to assume that the simplest explanation of a patient’s symptoms is correct to avoid misdiagnosing them with rare conditions. However, medical ‘zebras’ do exist, and it is important that clinicians equipped to diagnose and treat them when they occur.