Patient support groups
Amputee support group
We run a monthly amputee peer support group, which takes place on the first Friday of each month.
This group provides new and established amputees with the opportunity to come together and talk about their personal experiences of life after an amputation, discuss what they’ve found to be helpful or not helpful, with a shared understanding and shared support to each other. Family and carers are also welcome to attend.
For information please email us, or call us 020 7794 0500 ext 39963. Before you make enquiries, please ensure you download and read our privacy policy for this group.
Patient support groups – funding for set up
We provided grants to help set up other patient support groups, including:
- Endometriosis support groups– a face to face support group usually held once a month, with twice a year information days.
- This group is currently on hold; they hope to restart as soon as possible.
- Neuroendocrine Tumour (NET) support group – grant given to set up in 2016-17.
Other support groups at the Royal Free Hospital
Eye Matter – Eye Matter is a multi-activity peer support group to support people of any age and ability who living with visual impairment. Usually this is held twice a month at Edgware Hospital and once a month from the Royal Free Hospital in Hampstead.
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- This continues in current times with all activities happening virtually (e.g. weekly comedy nights, cookery classes, tea time chat, plus a range of other activities such as body conditioning)
- Contact: [email protected] with your full name and telephone number and they will get in touch
Please note, some of these are on hold.
Please contact your consultant or clinical nurse specialist for further information about whether local activities are still happening:
- HIV support groups– psychology workshops; patient forums; access to psychologists, peer mentors, community nursing
- Kidney support groups – peer support group/ volunteers
- Rheumatology support group
- Neurological patients – Edgware neuro rehabilitation centre facilities
- Pain management – ‘follow on’ group for those who have attended 1+ of the pain management programmes
- Cardiac support group – ‘heart 2 heart’
